HOW CAN I LEARN MORE ABOUT TREATMENT WITH KOSELUGO?
The following resources and videos can help provide you and your family with more information about Koselugo and about NF1 plexiform neurofibromas. As you review the materials, write down your questions and share them with your doctor at your child’s next visit.
Download this brochure to learn more about neurofibromatosis type 1 (NF1) plexiform neurofibromas (PN) and treatment with Koselugo.
Treatment Journey Tracker
Download this booklet to record your child’s treatment, and write down notes about their treatment so you can discuss them with your child’s doctor at their next appointment.
Meet Cooper and his family
Cooper is an 8-year-old boy who is living with NF1 plexiform neurofibromas. Listen to his family share their experiences in an early access program and learn how they currently manage his treatment with Koselugo.
WHAT ARE SOME ADVOCACY ORGANIZATIONS FOR PATIENTS WITH NF1 PN?
The following organizations can help you connect with the NF1 community and learn valuable information about the disease
The mission of the NF community.is to drive research, expand knowledge, and advance care of the
Visit thewebsite to discover news about treatment and their work toward a neurofibromatosis cure. They provide outreach through education and awareness, while offering hope and support to those affected by NF.
The preventative therapies.is focused on increasing the understanding of neurofibromatosis (NF), empowering affected families, and advancing research of
The resources listed above are independent, nonprofit patient service organizations. Their listing in this website does not imply endorsement.