


Support Teams
Caleb, age 7, living with NF1
PN.
Caleb is not a Koselugo
patient.
Alexion is committed to providing free assistance to you and your family with our team of support specialists. Our specialists will be available during every step of the journey, from considering Koselugo to being treated with Koselugo.
There are two groups of specialists available to you:
Contact your PEM today for one-on-one support and education to help you gain a greater understanding of NF1 PN and how it can affect your child.
Alexion is committed to providing free assistance to you and your family with our team of support specialists. When your loved one is prescribed Koselugo, you may be able to enroll in Alexion's free, personalized support program called OneSource.
Once your child has been prescribed Koselugo, a dedicated Alexion Case Manager is ready to help your family navigate the logistics of starting and staying on treatment. They can help by:
The OneSource CoPay Program helps cover some out-of-pocket costs for eligible Koselugo patients.
Learn more here.
To learn more or to contact your dedicated Case Manager, please visit www.alexiononesource.com/kos, or call
1-888-765-4747, Monday through Friday, 8:30 AM–8 PM ET.
To receive the latest updates, tools, and tips about NF1 PN and Koselugo, please provide us with some information about yourself.
What are the possible side effects of Koselugo?
Koselugo may cause serious side effects, including:
Before taking Koselugo, tell your healthcare provider about all your medical conditions, including if you:
Tell your healthcare provider about all the medicines you take, including prescription, over-the-counter medicines, vitamins, or herbal supplements. Especially tell your healthcare provider if you are taking aspirin, blood thinners, or other medicines to treat blood clots. Koselugo contains vitamin E, which may increase risk of bleeding.
What should I avoid while taking Koselugo?
Do not drink grapefruit juice, eat grapefruit, or take supplements with grapefruit or St. John’s Wort during treatment.
Most common side effects include: vomiting, stomach-area pain, nausea, dry skin, muscle and bone pain, feeling of tiredness or lacking energy, fever, sores in your mouth, headache, redness around the fingernails, itching.
These are not all the possible side effects of Koselugo. Call your
healthcare provider for medical advice about side effects. Your
healthcare provider may change your dose, temporarily stop, or
permanently ask you to stop taking Koselugo if you have any of
these side effects.
You may report side effects to AstraZeneca at 1-800-236-9933 or
at
https://
us-aereporting.astrazeneca.com
or FDA at
1-800-FDA-1088
or
www.fda.gov/medwatch.
What is Koselugo?
All families shown in this website have been compensated by Alexion, unless otherwise noted.